April 17, 2009
A pretty poor night and a poor day as well. Shelby's nights have been filled with sweats, tremors, insomnia, anxiety, vomiting, and pain. I have ordered the doctors to stop trazodone (the sleep aid). They are going to wean her off so as not to have adverse effects, but it is clear after looking back at this blog that her real troubles sleeping started when they started giving her trazodone. Her right side started stiffening up, her left side swelled and became extremely painful and she stopped sleeping at night at all. Her left hand and wrist are so swollen that they did an X-ray today to make sure nothing was broken. Thankfully this is not the case. I truly feel that it is the trazodone that did this to her and I pray that when she is weaned and it is clear from her system she will go back to making serious progress. Most importantly I just want her to sleep. It is during sleep that her brain will repair itself and it is essential that she gets that sleep now. They have given her oxycodone today because the pain was so unbearable and she has been sleeping on and off (almost completely on) since around 2:30. If she sleeps until Sunday this would be fine with me just as long as she finally gets some serious rest. PT and OT were almost a complete wash today because of her pain and so there isn't really anything to update there. It is frustrating to see how bad this week was and know how little I can do to help her. Pray that she keeps sleeping tonight. Pray that changing her meds helps. Pray hat she starts making some of the progress we all know she is capable of making.
Shelby,
I'm sorry to hear of the pain that you are experiencing. I will be praying that it subsides and that changing meds will help. Another set back I know and you are working so hard, I'm confident that progress will continue, we are very proud of you. Love you much.
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Matt,
I know I really don't know you...just what I learned from Sue at Merced Insurance and through this blog...but I know that you are doing so much for Shelby. The love, comfort, and faith that you have for her does so much. I pray for both of you. Please tell Sue I said hello. Lori Santistevan
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We definitely will be praying for Shelby as she is weened off this medicine. I am thankful that God gave her a husband like you Matt that loves her and understands her and can actually use his medical knowledge to see patterns! Our family will continue to pray for both of you.
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I am praying for you and Shelby. I am also praying that she can get some good sleep!
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I am so sorry to hear of all the difficulties that Shelby has been having; it is a blessing that you are there with her, Matt, and that you are monitoring the meds and her progress on them as carefully as you are; the idea of using the blog as daily documentation is excellent; a written record of everything that is happening is extremely valuable at this point!
I am keeping you and Shelby in my thoughts and prayers.
Kathy Conrotto
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If I could take your pain I would in a hot second, but I can't ,no one can. So use it ,get pissed and use it.
You can do this thing.
Hey Matt, Rolph says Hieeee
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