Scholarship bed status
Hi all! Not a whole lot happening here. It is getting colder and it rains more than I have ever experienced in my life. It rains in the summer. No snow yet but it is still only October.
Therapies have slowed to only Occupational Therapy. They are still casting her left arm/wrist and splinting the right to straighten and get the most functionality out of them. It is slow going mainly because they are hampered by how easily Shelby's skin breaks down. She has no body fat and pressure on any one spot can cause a open sore in just a matter of hours. This therapy will continue for the remainder of the year with at least one session per week. The insurance will pay for 4 or 5 more and after that,until the 1st of Jan we will have to pay for it ourselves. If we stop, not only will she not make any more progress but she will lose all the gains we have made thus far. Once this is all done our goal is for her to only require a splint at night to maintain. Like a retainer after the braces come off.
During my last post I told everyone about the scholarship bed at the Eisenhower Brain Injury Center. Shelby was not chosen to receive it for the new 90 term starting in November. They will however keep her on the list for the Feb 9th opening. Thank you all for your prayers. Keep them going for the Feb opening.
It has been an emotional week for Shelby. Those days are the hardest. She cries often...sobbing at times and it breaks our hearts a little more each time. The up side ...yesterday she started to cry and asked what happened and I told her that I thought if she really thought about it she would remember what happened. She stopped and thought and then told me she had heart surgery and a blood clot went to her brain. I explained that she was correct except the brain injury was not caused by a blood clot/stroke but rather a lack of oxygen to her brain, and that just that she was able to stop and recall this herself shows us there is improvement and healing happening. She stopped crying and smiled.
Keep us in your prayers we so appreciate each and everyone!
Just,
Sue
Therapies have slowed to only Occupational Therapy. They are still casting her left arm/wrist and splinting the right to straighten and get the most functionality out of them. It is slow going mainly because they are hampered by how easily Shelby's skin breaks down. She has no body fat and pressure on any one spot can cause a open sore in just a matter of hours. This therapy will continue for the remainder of the year with at least one session per week. The insurance will pay for 4 or 5 more and after that,until the 1st of Jan we will have to pay for it ourselves. If we stop, not only will she not make any more progress but she will lose all the gains we have made thus far. Once this is all done our goal is for her to only require a splint at night to maintain. Like a retainer after the braces come off.
During my last post I told everyone about the scholarship bed at the Eisenhower Brain Injury Center. Shelby was not chosen to receive it for the new 90 term starting in November. They will however keep her on the list for the Feb 9th opening. Thank you all for your prayers. Keep them going for the Feb opening.
It has been an emotional week for Shelby. Those days are the hardest. She cries often...sobbing at times and it breaks our hearts a little more each time. The up side ...yesterday she started to cry and asked what happened and I told her that I thought if she really thought about it she would remember what happened. She stopped and thought and then told me she had heart surgery and a blood clot went to her brain. I explained that she was correct except the brain injury was not caused by a blood clot/stroke but rather a lack of oxygen to her brain, and that just that she was able to stop and recall this herself shows us there is improvement and healing happening. She stopped crying and smiled.
Keep us in your prayers we so appreciate each and everyone!
Just,
Sue
Hi Sue, I tried to respond before, but I don't think it went through; it was so good to read this story and learn that Shelby can remember something so important to her and everyone around her! I think she is showing good progress, and that is definitely due to you and Matt, and your efforts!
I wanted to know about the collection for the van; how did it turn out? I plan to call the church to find out if they received my check; I haven't heard anything yet.
Take care,
Kathy Conrotto
Reply to this
Kathy, Thank you for all of the support and encouragement you and Gene have provided during this difficult time. The van fund raising continues and we appreciate each contribution and contributor. I am sure if you contact Tony he can answer any questions you have regarding the status of your check. Looking forward to seeing Isaac and meeting our new Everlee Hope in March. What a great family we have!
Reply to this