Merry Christmas from the Campbells and the Gersons
Merry Christmas to all our family and friends! It feels like very much like Christmas here. The air is cold (why anyone lives here in the winter I will never understand). We have had a small amount of snow, but for a Californian born and raised it is too cold for me! We have our tree in place and decorated. The decorations include the "party pinecones" Isaac collected, painted, put glitter on and mailed to us. They added a great touch to the tree and Hazel loves to eat them.
Sorry it has been so long since our last post. There really hasn't been too much to write about. We stay busy with therapies and doctors appointments although both have been slowing down in frequency. We finished our last therapy for the calendar year 2009 that will be covered by insurance. We will continue with occupational therapy and the serial casting/splinting to continue the gains that have been made getting Shelby's wrists, hands and fingers in more functional positions. It has been slow going due to the delicate condition of her skin. Skin breakdown is a real issue. It seems like the slightest pressure can cause sores on her hands and fingers. Julianne, the OT that has been working with her calls Shelby her "delicate flower". She has been so good to her. I can never thank her or praise enough for the time and effort she has put in on Shelby's hands. We have appointments for both Monday and Friday this week to continue the casting.
This week we will be seeing the neuro opthamologist to evaluate any vision issue that may have occurred as a result of the brain injury. Shelby says she the vision in her left eye is not so good. We will know soon enough I guess. That appointment is on Wednesday. The information packet we received regarding this appointment said to plan on the visit taking from 2 to 4 hours.
On Thursday, we have an appointment with her physical medicine and rehabilitation doctor. His name is Dr. Eckner. She will be getting botox shots in her neck to hopefully loosen up the muscles and help to straighten her neck out. Her head continually leans to the left and forward. It looks very, very uncomfortable.
Her wake/sleep cycle is still off. I am not sure we will ever get her back to sleeping at night consistently. Matt is up with her most nights until 3 or 4 in the morning. We are grateful he can pretty much set his own schedule and do some of his work from home. He can sleep late after a bad night and make up for some of the lost sleep. I wish sleep was the only thing Matt has lost due to this. He continues to impress me with his unwaivering love for and devotion to Shelby.
Thank you all for your prayers and support. We miss you all very much!
Just Sue
Sorry it has been so long since our last post. There really hasn't been too much to write about. We stay busy with therapies and doctors appointments although both have been slowing down in frequency. We finished our last therapy for the calendar year 2009 that will be covered by insurance. We will continue with occupational therapy and the serial casting/splinting to continue the gains that have been made getting Shelby's wrists, hands and fingers in more functional positions. It has been slow going due to the delicate condition of her skin. Skin breakdown is a real issue. It seems like the slightest pressure can cause sores on her hands and fingers. Julianne, the OT that has been working with her calls Shelby her "delicate flower". She has been so good to her. I can never thank her or praise enough for the time and effort she has put in on Shelby's hands. We have appointments for both Monday and Friday this week to continue the casting.
This week we will be seeing the neuro opthamologist to evaluate any vision issue that may have occurred as a result of the brain injury. Shelby says she the vision in her left eye is not so good. We will know soon enough I guess. That appointment is on Wednesday. The information packet we received regarding this appointment said to plan on the visit taking from 2 to 4 hours.
On Thursday, we have an appointment with her physical medicine and rehabilitation doctor. His name is Dr. Eckner. She will be getting botox shots in her neck to hopefully loosen up the muscles and help to straighten her neck out. Her head continually leans to the left and forward. It looks very, very uncomfortable.
Her wake/sleep cycle is still off. I am not sure we will ever get her back to sleeping at night consistently. Matt is up with her most nights until 3 or 4 in the morning. We are grateful he can pretty much set his own schedule and do some of his work from home. He can sleep late after a bad night and make up for some of the lost sleep. I wish sleep was the only thing Matt has lost due to this. He continues to impress me with his unwaivering love for and devotion to Shelby.
Thank you all for your prayers and support. We miss you all very much!
Just Sue
Hello, Sue, Matt and Shelby, thank you for the wonderful Christmas message; we are keeping you all in our thoughts, and wish Shelby well in her continued progress. We hope that all of you continue to stay well and healthy, and keep your spirits uplifted during the winter months!
Kathy and Gene Conrotto
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Hello, Matt, Sue and Shelby. I continue to pray for all of you, and I know that God will continue to give you strength in this time of need. May God bless you and keep you!
Love Brendan
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